IN-PERSON Health Summit AGENDA

VIRTUAL ONLY Health Summit AGENDA

Agenda for last year's virtual conference

Workshops

Action Participation (Gross Motor Foundation)

Speakers: Lisa Pinson

Autism in Early CP - Overlapping Phenotypes and Screening

Speakers: Cheryl Klaiman and Adriana Mendez

Baclofen Pumps, SDR and Later Spasticity Management

Speakers: Shenandoah (Dody) Robinson

Bioengineering and Spasticity

Speakers: Teresa Sukal Moulton

Bone Growth, Nutrition and CP

Speaker: Chris Modlesky

 

Brain and Spinal Cord Development

Speaker: Betsy Ostrander

 

Comparison of Upper Limb Motor Interventions

Speaker: Jill Heathcock

 

Development of Gait in the Under 3

Speaker: Paulo Selber

Dystonia Following Neonatal Brain Injury - Modeling & Assessment

Speaker: Bhooma Aravamuthan

 

Early Cognition in High-Risk Infants- Assessments and Interventions

Speaker: Darrah Haffner

 

Early Motor Interventions to Improve Gross Motor - Lower Extremity Task Specific Motor Training

Speakers: Ginny Paleg and Barbara Sargent

 

Epilepsy and CP

Speaker: Betsy Ostrander

 

Genetics Update

Speaker: Michael Kruer

Go Baby Go

Speaker: Cole Galloway

Hand Assessments in the Under 2 (HAI, mini-AHA, QUEST, IMAL etc..) Choosing the right one

Speakers:  Allison McIntyre and Sara Bolivar

Hip Surveillance

Speaker: Ben Shore

 

High Risk of CP and Difficult Conversations

Speaker: Nathalie Maitre

 

Hypotonia and the HINE

Speakers: Ginny Paleg and Alvaro Hidalgo

 

Integrating New Technologies to Advance Early Detection and Intervention

Speaker: Bernadette Gillick

 

Learning the Alberta Infant Motor Scale (AIMS)

Speakers: Andrea Duncan, Lisa Pinson

Lower Extremity Selective Motor Control

Speakers: Eileen Fowler, Loretta Staudt, Barbara Sargent

Multidisciplinary Feeding Evaluations & Interventions

Speaker: William Sharp

 

Music interventions in HRCP and Early CP

Speakers: Caitlin Kjeldsen and Megan Moran

Neuroplasticity

Speaker: Vera Joanna Burton

Neurosurgery Surveillance in High Risk Infants

Speakers: Shenandoah (Dody) Robinson

Observation of Selective Motor Control at 3 months of age

Speakers: Colleen Peyton and Teresa Sukal Moulton

 

Orthotics & Mobility Equipment

Speaker: Emma Blass

Parenting Assessment Tools and Targeting Parent Interventions

Speakers: Mary Lauren Neel and Sheena Carter

Resilience vs. Social Determinants of Health

Speakers: Salathiel Kendrick-Allwood and Keecia Walker

 

Shared Decision Making: Communicating the Diagnosis- Role of the Physician and Parent

Speakers: Nathalie Maitre and Mary Lauren Neel

Sleep, Assessment, Interventions, Developmental Impact

Speakers: Andrea Duncan

Stem Cell Update

Speaker: Iona Novak

 

Supporting Lifespan Function- a PT Perspective

Speakers: Christa Weigel and Julie Perfect

 

The ABCs of Community CP Camps

Speaker: Gavin Colquitt

Tone/Strength/Range of Motion: The Physical Exam

Speakers: Josh Vova and Tim Krater

MORE WORKSHOPS COMING SOON…

It is the policy of CPF that no recordings are permitted in the workshop sessions. Audio or video recording is strictly prohibited

Featured Keynote Speakers

Photo of Dave Dame

Dave Dame (phonetic: DAYVE DAYME)
Director of Accessibility, Microsoft

In his role as Director of Accessibility, Dave is leading the accessibility portfolio for Surface Products aligning with Windows and product innovation roadmaps to empower users of all abilities.

Dave is a leadership coach, enterprise agile product leader and trainer with over 20 years of experience, which he leverages to drive large-scale transformation in complex organizations. Focusing on building high performing teams, he has trained over 600 professionals in product management, leadership and agile delivery practices. Dave has worked with technology companies such as OpenText, PTC, and MCAP; in many cases improving delivery times by over 150%.

Photo of Kristen Gallant

Kristen Gallant
Co-Founder, Big Little Feelings

Before becoming the co-founder of Big Little Feelings, Kristin studied maternal and child education at the Elliott School of International Affairs at George Washington University. Her work took her all around the world, working with children in underserved regions in places like Thailand and with disabled communities here in the U.S. Her work with children spans more than a decade, and Big Little Feelings has given Kristin the opportunity to combine that experience with her passion of helping parents and families put strategies into practice at home. She focuses on sharing and celebrating an approach to parenting that is research-backed, accessible, simple, and practical enough for the messy, chaotic, beautiful reality that is raising small children.

Kristin is committed to promoting inclusion and celebrating diversity. Her honest, authentic approach often includes observations about the lack of representation in toys, books, TV, and culture in general. By bringing awareness to underrepresented groups, she champions a diverse, accepting, judgment-free community where all families feel seen, heard, and empowered. Kristin lives in Denver, Colorado with her husband and their toddlers, Lulu and June.


Stakeholder Engagement in Disability Research- The Example of Mild HIE
Lina Chalak, M.D., M.S.C.S.

Keynote Panelists

Photo of Lily Collison

Lily Collison
Program Director, Gillette Children’s Healthcare Press

Lily co-authored "Pure Grit: Stories of Remarkable People Living with Physical Disability" with Kara Buckley, Senior Advisor, U.S. Olympic and Paralympic Committee. "Pure Grit" tells the stories of nineteen people across the globe, who grew up with physical disability and are living and thriving in diverse fields. Published in 2021, this book is available on Amazon, and all proceeds go to research.

Lily’s adult son has spastic diplegia. In 2020, she wrote "Spastic Diplegia–Bilateral Cerebral Palsy" in conjunction with senior medical staff at Gillette Children’s. This book is also available on Amazon, and again, all proceeds go to research.

Lily previously completed a research master’s – a case study on SEMLS, rehabilitation and outcome evaluation. With a background in science, her 30+ year career included senior management positions in industry and education.

Photo of Ashley Harris Whaley

Ashley Harris Whaley, SLP
Project Manager of Engagement & Communities, Cerebral Palsy Foundation

Ashley has a lifetime of lived experience as a disabled woman with spastic diplegia cerebral palsy. She is a member of the American Speech-Language-Hearing Association and is a board-certified Speech-Language Pathologist. 

Ashley holds a Master’s degree in Communication Sciences and Disorders from Western Carolina University. Ashley is a freelance writer, established public speaker, and online educator. She is the founder of Disability Reframed, a collaborative online learning community that works to dismantle antiquated attitudes towards disability and rebuild them by changing perspectives through education and conversation. 

Her debut children's book, I Am, You Are, with Penguin Random House UK is due out in spring 2023.

Featured Workshop Speakers

Photo of Andrea Duncan

Andrea Duncan, MD, MS

Neonatologist in the Division of Neonatology at Children's Hospital of Philadelphia

Photo of Jill Heathcock

Jill Heathcock MPT, PhD

Associate Professor, The Ohio State University
Director of the Pediatric and Rehabilitation Laboratory (PEARL Lab)

Photo of Nathalie Maitre

Nathalie Maitre, MD, PhD

Director of Early Development & Cerebral Palsy Research
Emory University School of Medicine

Photo of Iona Novak

Iona Novak, OT, PhD

Cerebral Palsy Alliance Chair of Allied Health, The University of Sydney, Australia

 
““Excellent speakers, cutting edge topics, pragmatic and theoretical informational - all in one place. The most exciting part though was that I left with a place of action to implement change.””

Additional Training and Courses Available

Pre-Conference - Basic Core Early Detection E-Course - VIRTUAL Available starting July 8 ($150.00)

 

The Basic Core Early Detection eCourse is 6-part workshop series that we are offering for the first time. This course will provide attendees with a structured outline on the implementation of best evidence for the early detection of infants at high risk of cerebral palsy. This 6 part series will offer basic implementation strategies, core knowledge of early detection principles and assessments, practical case examples and support to translate knowledge into practice for early detection of cerebral palsy at your own local sites. 

This course is highly recommended for those who have not attended a past Implementation for Early Detection and Intervention of Cerebral Palsy Conference. It is open to all, but targeted to pediatric providers who want to improve outcomes for high risk infants through early cerebral palsy diagnosis and intervention in a multidisciplinary setting including: Pediatricians, Family Practitioners, Neonatologists, Neurologists, OTs, PTs. Business Managers, Nurse Practitioners, Researchers and Trainees.

Basic Core Course Workshops Include:

  • Get the Basics on Detection Guideline Implementation Strategies and Tools

  • Communicating a Diagnosis or Risk of CP

  • Reviewing Neuromotor and Neurological Examinations (GMA/HINE)

  • Motor Function Assessment for High Risk Infants

  • Advances in Neuroimaging in the Detection of Cerebral Palsy

  • Looking into the Future: Prognosis and Best Practices for Improved Long-Term Outcomes

  • BONUS CONTENT - Communication and Language Assessments

  • BONUS CONTENT - Early Motor Interventions to Improve Gross Motor Skills

Objectives:

  • Identify the discrete component of the guidelines for best evidence in early detection and intervention of cerebral palsy (CP).

  • Describe the current processes for diagnosis and intervention of CP in your setting.

  • Identify the strengths, weaknesses, opportunities and threats to implementing the guidelines in your program.

  • Develop a process flow to adapt the critical elements of the guidelines to your own high-risk infant follow-up setting.

The course will be available starting on July 1st. Participants will then have 3 months to complete the work at their own pace.

Upon completion of the Pre-Conference - Basic Core Early Detection E-Course:

CME Credit

The Emory University School of Medicine designates this live activity for a maximum of 6.0 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

The Emory University School of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

GMA BASIC Training Course

 

The course fulfills the standards specified by the GM-Trust.

Monday - Wednesday, August 15-17, 2022 ($950.00)*
LOCATION: Emory University in Atlanta, GA
Monday and Tuesday Schedule - 8am - 4:30pm 
Wednesday Schedule - 8am - 4pm

This assessment method has shown its merit for the prenatal and postnatal evaluation of the integrity of the nervous system. Compelling evidence is available that the assessment of General Movements (GMs) at a very early age is the best predictor for cerebral palsy. This method has become a potent supplement to the traditional kind of neurological examination.

***ADDITIONAL COURSE AVAILABLE***
Friday - Monday, July 22-25, 2022 ($950.00)
LOCATION: Columbia University, NYC
*must provide proof of COVID vaccination to attend

PLEASE NOTE THIS IS A 3.5 Day course
Friday - Sunday Schedule - 8am - 4:30pm  
Monday Schedule - 8am - 12pm 

GMA ADVANCED Training Course

 

The course fulfills the standards specified by the GM-Trust.

Monday - Wednesday, August 15-17, 2022 ($950.00)*
LOCATION: Emory University in Atlanta, GA
Monday and Tuesday Schedule - 8am - 4:30pm 
Wednesday Schedule - 8am - 4pm

Participation is possible ONLY for individuals who successfully passed a Basic Training Course held under the auspices of the GM-Trust.

The Advanced Course will provide an additional intensive training in correct judgement. This training will deal with the details of the assessment, the proper terminology and technique as well as with the application of individual developmental trajectories.

HINE Training Course - Friday, August 12, 2022 (FREE if registered for the Early Cerebral Palsy Health Summit)

 

LOCATION: Emory University in Atlanta, GA
Schedule - Morning session 8am-12noon
Afternoon session 1pm-5pm

Hammersmith Infant Neurological Examination. Only available for those attending the conference.

The HINE is an easily performed and relatively brief standardized and scorable clinical neurological examination for infants between 2 and 24 months of age, accessible to all clinicians, with good inter-observer reliability even in less experienced staff. It has no associated costs such as lengthy certifications or proprietary forms. The use of the HINE optimality score and cut-off scores provides prognostic information on the severity of motor outcome. The HINE can further help to identify those infants needing specific rehabilitation programs. 

HNNE Training Course - Friday, August 12, 2022 (FREE if registered for the Early Cerebral Palsy Health Summit)

 

LOCATION: Emory University in Atlanta, GA
Schedule - Morning session 8am-12noon
Afternoon session 1pm-5pm

Hammersmith Neonatal Neurological Examination. Only available for those attending the conference. Previous completion of HINE training recommended.

The HNNE is a widely used standardized instrument to evaluate and follow neurological status, in both clinical and in research work. It consists of 34 items organized into six categories: tone, tone patterns, reflexes, movements, abnormal signs, and behaviors, and thus comprises various aspects of neonatal neurological function (Dubowitz et al., 1999). HNNE is easy to perform, does not need a formal certification, and takes only 10 to 15 minutes (Dubowitz et al., 1999; Dubowitz et al., 2005).