Implementation of Early detection and intervention for cerebral palsy Conference
April 11-13, 2019
Nationwide Children’s Hospital
700 Children's Dr, Columbus, OH 43205
Changing what’s possible in early detection and interventions
ALL NEW PROGRAMMING
This is the 2nd annual conference promoting new pathways for translating knowledge into practice for early detection and intervention of cerebral palsy. Through a series of expertly moderated workshops, led by world renowned clinicians and researchers, you will develop a process to make evidence base into clinical reality. All new programming features debates from experts in the field on the latest cutting edge research and posters from implementers across the country.
Who should attend this conference: Teams of pediatric providers who plan on implementing early diagnosis and intervention of CP in a multidisciplinary setting. Pediatricians, Family Practitioners, Neonatologists, Neurologists, OTs, PTs, Business Managers, Nurse Practitioners, Researchers and Trainees welcome.
We highly encourage patient care providers to come with their leaders/organizational/business partners in order to benefit from the implementation workshops that are all team-based.
Global Objectives:
Identify the discrete component of the guidelines for best evidence in early detection and intervention of cerebral palsy (CP).
Describe the current processes for diagnosis and intervention of CP in your setting.
Identify the strengths, weaknesses, opportunities and threats to implementing the guidelines in your program.
Develop a process flow to adapt the critical elements of the guidelines to your own high-risk infant follow-up setting.
Conference Co-Chairs
Nathalie Maitre, MD, PhD - Director of NICU Follow Up Programs, NICU Dev Therapies, Nationwide Children’s Hospital
Rachel Byrne - Vice President of Programs, Cerebral Palsy Foundation
Conference Hosts
Speakers
Giovanni Cioni, MD, PhD
Scientific Director Stella Maris Foundation Director School of Specialization in Child Neuropsychiatry, University of Pisa
Bernadette Gillick, PhD, MSPT, PT
Neuroscientist, Director Pediatric Neuromodulation Laboratory, McKnight Land Grant Professor, University of Minnesota Medical School
Diane Damiano, PPT, PhD
Chief of the Functional and Applied Biomechanics Section, National Institutes of Health
Sarah Herrlinger
Director Global Accessibility Policy and Initiatives, Apple
Nathalie Maitre, MD, PhD
Neuroscientist and Neonatologist Director of the NICU Follow-up Program and Medical Director of NICU Developmental Therapies. Nationwide Children’s Hospital
All Workshop Speakers (coming soon)
For a list of Workshop Speaker Disclosure Statements - Click here.
““Excellent speakers, cutting edge topics, pragmatic and theoretical informational - all in one place. The most exciting part though was that I left with a place of action to implement change.””
Program
Day One: Introduction and Cutting-Edge Debates *ALL NEW PROGRAMMING
Day Two: Early Detection of Cerebral Palsy
CLICK HERE TO DOWNLOAD DAY TWO COURSE DESCRIPTIONS
Day Three: Early Interventions of Cerebral Palsy
CLICK HERE TO DOWNLOAD DAY THREE COURSE DESCRIPTIONS
Attire for the workshop sessions of the meeting is business casual. Please bring a jacket or sweater, as room temperatures may vary.
It is the policy of CPF that no cameras are permitted in the workshop sessions. Please refrain from taking any photos in those locations. Audio or videotaping is strictly prohibited
Additional Training Available
GMA BASIC Training Course - Sunday - Tuesday, April 14-16 ($950.00)*
The course fulfills the standards specified by the GM-Trust.
Sunday and Monday Schedule - 8am - 4:30pm
Tuesday Schedule - 8am - 4pm
This assessment method has shown its merit for the prenatal and postnatal evaluation of the integrity of the nervous system. Compelling evidence is available that the assessment of General Movements (GMs) at a very early age is the best predictor for cerebral palsy. This method has become a potent supplement to the traditional kind of neurological examination.
HINE Training Course - Wednesday, April 10 (FREE)
Schedule - 9am - 3pm
Hammersmith Infant Neurological Examination. Only available for those attending the conference.
The HINE is an easily performed and relatively brief standardized and scorable clinical neurological examination for infants between 2 and 24 months of age, accessible to all clinicians, with good inter-observer reliability even in less experienced staff. It has no associated costs such as lengthy certifications or proprietary forms. The use of the HINE optimality score and cut-off scores provides prognostic information on the severity of motor outcome. The HINE can further help to identify those infants needing specific rehabilitation programs.
HNNE Training Course - Sunday, April 14 (SOLD OUT)
***Please email rebecca.lam@yourcpf.org if you would like to be added to a wait list if a spot should become available.
Schedule - 9am - 1pm
Hammersmith Neonatal Neurological Examination. Only available for those attending the conference. Previous completion of HINE training recommended.
The HNNE is a widely used standardized instrument to evaluate and follow neurological status, in both clinical and in research work. It consists of 34 items organized into six categories: tone, tone patterns, reflexes, movements, abnormal signs, and behaviors, and thus comprises various aspects of neonatal neurological function (Dubowitz et al., 1999). HNNE is easy to perform, does not need a formal certification, and takes only 10 to 15 minutes (Dubowitz et al., 1999; Dubowitz et al., 2005).
Registration Details
Registration - Thursday - Saturday, April 11-13 ($400.00)
Includes attendance for 2.5 day conference for one (1) individual.
Optional FREE HINE Training on (Wednesday April 10) and HNNE Training (Sunday April 14) available for attendees.
Networking Dinner - Friday, April 12 ($90.00)
Dinner ticket for one (1) individual
GMA BASIC Training Course - Sunday - Tuesday, April 14-16 ($950.00)*
Sunday and Monday Schedule - 8am - 4:30pm
Tuesday Schedule - 8am - 4pm
HINE Training Course - Wednesday, April 10 (FREE)
Schedule - 9am - 3pm
Hammersmith Infant Neurological Examination. Only available for those attending the conference. Must register here to be able to attend. Capacity extremely limited!
HNNE Training Course - Sunday, April 14 (SOLD OUT)
Schedule - 9am - 1pm
Hammersmith Neonatal Neurological Examination. Only available for those attending the conference. Previous completion of HINE training recommended. Must register here to be able to attend. Capacity extremely limited!
***Please email rebecca.lam@yourcpf.org if you would like to be added to a wait list if a spot should become available.
TRAINEE SCHOLARSHIPS ARE NOW AVAILABLE!
Through the generosity of the Center for Perinatal Research at Nationwide Children’s Hospital, the CPF is proud to offer a limited number of Trainee Scholarships. CPF seeks applicants who are full-time students or trainees to apply for this scholarship.
Scholarship recipients will receive:
Complimentary general registration for one individual
Complimentary Networking Dinner ticket for one individual
Two nights accommodations
Up to $400 to cover airfare, train or bus travel
Valuable networking opportunities
Opportunity to learn from multi-disciplinary experts in the field
The application deadline is February 15, 2019, 5pm ET.
Click here to apply for Trainee Scholarship
CANCELLATION POLICY
All cancellations must be made in writing to rebecca.lam@yourcpf.org
· Cancellations received before February 11, 2019 - 70% of the fee will be refunded
· Cancellations received from February 11 - March 11, 2019 - 30% of the fee will be refunded
· Cancellations from March 11, 2019 will not receive a refund. However, the registration may be transferred to another name at no cost. Any substitutions must be advised in writing to rebecca.lam@yourcpf.org
Exhibitor Package, Click here to download.
INDUSTRY PARTNER
Pedal with Pete Foundation
The Pedal with Pete Foundation’s community of volunteers work to raise funds for cerebral palsy (CP) research through events that include bike rides and walks, and through other fundraising. Established by Pete Zeidner, who had CP, in Kent, Ohio, these events have spread to Columbus, Ohio and Emmetsburg, Iowa, and we seek to start events elsewhere. With the funds raised, grants of approximately $50,000 per year are awarded to two research projects to further their work developing prevention, treatments, and cures for CP. Pedal with Pete is internationally recognized as a discerning, consistent funder of seed grants for CP research.
LANYARD SPONSOR
Gillette Children’s Specialty Healthcare
Children who have disabilities and complex medical needs— and their families—have been at the center of our mission for more than 120 years. Learn how we’ve built on this long history to help patients improve their health, achieve greater wellbeing, and enjoy life.
EXHIBITORS
Cascade Dafo
Cascade Dafo, creator of the original DAFO® (Dynamic Ankle Foot Orthosis), is the industry’s leading manufacturer of pediatric lower-extremity braces. The patient-focused company believes better mobility gives all children a wider range of experiences, more success in their activities, and ultimately more control over their lives. To that end, Cascade Dafo creates innovative products unmatched in quality, fit, and function—backed with a full (90-Day) warranty and exceptional customer support. The company’s product designs, technical support, education, and research and development have a sole focus: helping kids lead healthier, happier lives. For more, visit www.cascadedafo.com or call 800.848.7332.
Cerebral Palsy Foundation
The Cerebral Palsy Foundation defines and addresses Moments of Impact – the times at which interventions and insights, if properly implemented, have the power to change lives. For more information, visit yourpcf.org.
Functional Formularies
Functional Formularies originated in the quiet and beautiful countryside of Wilmington, Ohio. The company was founded by Robin Gentry McGee who over the past several decades has developed a vast knowledge of the food as medicine model. It was only natural for Robin to use her experience and knowledge to help her father and herself when faced with life threatening health issues. After experiencing positive results, she is more determined than ever to make it easier for others by taking the guesswork out of choosing healthy alternatives.
Ipsen
Our long-term commitment to advancing neuroscience and toxins research is evidenced by over 25 years of clinical experience. We are fully committed to improving people’s lives through safe and effective treatments, support and services in spasticity, movement disorders, and specific indications in esthetic medicine.
Nationwide Children’s Hospital
Named to the Top 10 Honor Roll on U.S. News & World Report’s 2018-19 list of “America’s Best Children’s Hospitals,” Nationwide Children’s Hospital is one of America’s largest not-for-profit freestanding pediatric healthcare systems providing wellness, preventive, diagnostic, treatment and rehabilitative care for infants, children and adolescents, as well as adult patients with congenital disease. Nationwide Children’s has a staff of nearly 13,000 providing state-of-the-art pediatric care during more than 1.4 million patient visits annually. The Research Institute at Nationwide Children’s is one of the Top 10 National Institutes of Health-funded freestanding pediatric research facilities. More information is available at NationwideChildrens.org.
Saol Therapeutics
Saol Therapeutics (pronounced “Sail”) is a privately-held, specialty biotech pharmaceutical company with operations in both Roswell, GA and Dublin, Ireland. Saol, focused on neuroscience (spasticity) and rare disease, is committed to providing and advancing therapeutic options for patients and the physicians treating these populations. For more information, visit www.saolrx.com.
SUBMISSION GUIDELINES
Before you begin with the online submission form please prepare the following information. Only abstracts following the guidelines will be accepted.
The abstract body text is limited to a maximum of 300 words, excluding title and authors. Figures and tables are not allowed.
Abstract title (limited to a maximum of 200 characters).
Contact details of the main author.
Details of author and all co-authors: family name, initial(s), institute, city, country.
Abstract for poster: Structure your abstract with the following headings: – Introduction – Setting – Patients and methods – Results – Conclusion – Please use exactly the lay-out of this format abstract.
Please note the deadline of February 15th, 2019. Abstracts arriving after this date will not be accepted.
Abstracts should be submitted via the online submission platform. Mandatory fields are marked with a red asterisk (*).
Deadline for poster proposal submission
is February 15th 2019, 11:59 pm ET.
Networking Dinner, Friday April 12
Le Méridien, The Joseph
620 N High St, Columbus, OH 43215
6:30-10:30PM
Welcome to Columbus, Ohio!
Conference Location
Thursday: Nationwide Children’s Hospital, Discovery Auditorium in The Research Institute - 700 Children’s Drive, Columbus, 43205. Follow the green path to the yellow path. Yellow path will end at the Research Institute. Follow signs to the Discovery Auditorium. (Signs will be posted.)
Friday & Saturday: Nationwide Children’s Hospital, Stecker Auditorium. Enter the Ann Isaly Wolfe Education Building located at 575 South 18th Street. This entrance is located towards the end of the Outpatient Care Center loop and marked with a blue awning. (Signs will be posted.)
Accommodations
The CPF has reserved a block of rooms at the below hotels:
Renaissance Columbus Downtown Hotel – negotiated rate of $153 per night. These rooms will be available until March 21st, 2019 OR until all have been booked at the group rate, whichever comes first. We recommend booking your hotel as soon as your travel plans have been confirmed: CLICK HERE
Shuttle
Shuttle schedule from the CPF recommended hotel, Renaissance Columbus Downtown Hotel.
For other hotels, some in downtown Columbus offer shuttle service to NCH. Please ask if this option is available to you.
Thursday, April 11th: 700 Children’s Drive, Wexner Lobby, Discovery Auditorium
Shuttle service will be available from the hospital to the Renaissance Downtown Hotel running approximately every 10 minutes from 5:30pm to 7:30pm.
Friday April 12th: Address: 575 South 18th Street entrance, Education Building, Stecker Auditorium
Shuttle service will be available from the Renaissance Downtown Hotel to the hospital running approximately every 15 minutes from 7:15am to 8:30am.
Shuttle service returning from the hospital to the Renaissance Downtown Hotel running approximately every 15 minutes from 5:00pm to 5:45pm.
Networking Dinner, Friday, April 12th, 6:30pm-10:30pm; Address: Le Méridien, The Joseph - 620 N High St, Columbus, OH 43215
Shuttle service will be available from the Renaissance Downtown Hotel to the Le Meridien from 6:00pm and 6:15pm.
Shuttle service will return from the restaurant to the Renaissance Downtown Hotel running approximately every 15 minutes from 9:30pm to 10:30pm.
Saturday April 13th: Address: 575 South 18th Street entrance, Education Building, Stecker Auditorium
Shuttle service will be available from the Renaissance Downtown Hotel to the hospital running approximately every 15 minutes from 7:15am to 8:30am.
Parking
Please DO NOT park on-campus due to limited availability and the need for NCH patients to utilize these spaces. You can utilize Uber or Taxi. Give the address of 700 Children’s Drive (Thursday) or 555 South 18th Street (Friday&Saturday). This will shorten your walk inside the hospital.
Air Travel
John Glenn Columbus International Airport, is just minutes from the central business district and less than ten minutes from Nationwide Children’s Hospital.
Experience Columbus
With a population of 780,000, Columbus is the 15th largest city in the United States. The city is perfect for active lifestyles, having recently invested $20 million to develop a growing system of bike and fitness trails that connect the suburbs and river trails to downtown’s $44 million riverfront park system restoration. Columbus is recognized for its neighborhoods ranging from historic to hopping, for its fabulous casual and fine dining venues, shopping experiences, museums and more. If you are a sports enthusiast, there is no offseason in the Columbus area with a wide variety of events and venues.
Things to do in Columbus
The world-class Columbus Zoo and Aquarium is a delight any time of year. Franklin Park Conservatory and Botanical Gardens brings horticulture and art together with a spectacular glasshouse, a stunning community garden campus and sculpture sprinkled throughout. The brand new Scott's Miracle-Gro Foundation Children's Garden focuses on introducing and connecting children to the natural world. The Columbus Museum of Art offers sunny galleries with rotating exhibits and an outdoor sculpture garden. COSI mixes science and fun for kids and adults. Don't miss the new American Museum of Natural History Dinosaur Gallery. Parks like the Scioto Mile connect the city to nature, and dozens of miles of multi-use trails span Columbus.
If you're more of a sporty type, you'll find professional and collegiate games and matches all year long. From Columbus Crew SC to the NHL's Columbus Blue Jackets to the MLB AAA Columbus Clippers, you're going to find something to cheer for. Find great brand-name shopping at Easton Town Centerand Polaris Fashion Place or peruse the boutiques of the Short North Arts District, Grandview and German Village.
With a cultural scene to rival any in the nation, you have your pick of live music, art exhibitions, concerts and theater. And be sure to grab a cup of coffee, because you're going to want to stay out late.